The Global Twins and Multiples Priority Setting Partnership aims to bring twins, multiples, parents, carers, clinicians and scientists together to identify the top priorities for twin and multiple research.

While multiple births account for an average of three percent of total births, they contribute to a much larger portion of new-born deaths (10 percent). The incidence of multiple pregnancy is rising, due mainly to the increasingly widespread use of assisted reproduction techniques and delayed childbirth resulting in advanced maternal age at conception.

However, national audits have yet to focus on multiple pregnancies in any detail and targeted steps to reducing deaths among multiple pregnancies have been consistently absent from service reviews, commissioning documents, inspection frameworks and more recently the UK stillbirth care bundle.

To reduce twin and multiple conditions and deaths, and to improve long term health outcomes, we are bringing together twins, multiples, parents, carers, clinicians and scientists in a Global Twin and Multiple Priority Setting Partnership. This partnership aims to identify the top priorities for research that matter to twin and multiple patients and the healthcare professionals who work with them.

If you are a twin, multiple, parent or carer of twins or multiples, or have clinical experience as a healthcare professional of twins or multiples, we would welcome your participation in our partnership.

What is involved

Joining our partnership would involve giving your opinion on the unanswered research questions “research uncertainties” you think are most important through two online surveys. Each survey will take approximately 15 minutes to complete. We would require you to complete both surveys to ensure the results are accurate and effective.

We expect that a list of prioritised research uncertainties reflecting the most pressing clinical needs, as viewed by twin and multiple families and healthcare professionals, will guide funding and research organisations, worldwide, in setting their research priorities.

There has been much research and work around the health of singletons which neglects the unique needs of twins and multiples and their families. This partnership aims to ensure the voices of twins, multiples, parents, carers and professionals are at the forefront of future research and practice, to benefit twins and multiples.

Want to have your say?

Click here to participate in the survey now.

 

Contact:
Asma Khalil

Asma Khalil
Professor Asma Khalil MD(Res) MRCOG MSc(Epi) MBBCh
Professor of Maternal Fetal Medicine
Lead of the Multiple Pregnancy Service
National Institute for Health and Care Excellence (NICE) Fellow (2013-16)
Fetal Medicine Unit
Department of Obstetrics and Gynaecology
St George's University of London
4th floor, Lanesborough Wing
St. George's Hospital
London SW17 0QT
Email: This email address is being protected from spambots. You need JavaScript enabled to view it. 
Phone: +44 7917400164

 About the partnership

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Twins Research Australia

Twins Research Australia brings twins and researchers together for vital health research that benefits everyone. Twins and their families make our research possible by volunteering to join in studies. Today, over 70,000 twins are TRA members or nearly 20 percent of Australia’s entire twin population. This makes us one of the largest volunteer twin research registers in the world.

The impact of our research is wide-ranging and widespread. We have contributed to new insights, prevention and treatment for some of the most challenging health problems of our times. We are Australia’s only national twin research centre of excellence and are recognised as a world leader in this field. We are based at the University of Melbourne, and undertake and support twin research in institutes and hospitals across Australia and globally.

 

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TAMBA

Tamba - Twins and Multiple Births Association - is the United Kingdom's leading twins and triplets charity. Tamba is the only UK-wide charity working to improve the lives of twins, triplets or more, and their families. We do this through successful campaigning to improve health and developmental outcomes; funding clinical research to reduce the risks faced before, during and after birth; and by providing practical support for all families, including those in crisis.

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St George’s, University of London

St George’s is the UK’s only university dedicated to medical and health sciences education, training and research. Our distinctiveness is based on our exclusive focus on health sciences and medicine and we strive to bring an innovative and collaborative approach to all we do.

We provide a world-class multi-professional health sciences education that equips our graduates to meet today’s healthcare needs through relevant scientific research, clinical excellence, strong interpersonal skills and team-based working. Sharing a clinical environment with a major London teaching hospital, our innovative approach to education results in well-rounded, highly skilled clinicians, scientists, and health and social care professionals.

Twins Research Australia

Address: 3/207 Bouverie St
Carlton, Vic 3010

Freecall: 1800 037 021

Email: info@twins.org.au

ABN: 84 002 705 224

Twins Research Australia is a national resource supported by a Centre of Research Excellence Grant from the National Health and Medical Research Council and housed within the University of Melbourne.

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